Validación del Cuestionario de calidad de vida ConQol, en niños chilenos portadores de cardiopatías congénitas.

Resumen

VALIDATION OF QUALITY OF LIFE QUESTIONNAIRE CONQOL  FOR CHILEAN CHILDREN WITH CONGENITAL HEART DISEASES

Background: ConQoL questionnaire assesses health related quality of life among children with congenital heart diseases. It has a version for children aged 8 to 11 years old and another for children  aged 12 to 16 years old. Aim: To validate ConQol questionnaire for Chilean children with a congenital heart disease. Material and methods: Using a multicentric cross sectional design, 334 children from four hospitals (54% males), were surveyed. Among them 45% were aged 8 to 11 years old and 55%, 12 to 16 years old. The study involved three stages: cross cultural adjustment of the original questionnaire, pre-test study, and estimation of its psychometric properties. Content, construct and criterion validity and internal consistency with Cronbach’s alpha, were assessed. Results: The version for children aged 8 to 11 years old and comprised by three domains (symptoms, activity and relationships), obtained and ? ? 0.60. In the questionnaire for children aged 12 to 16 years old, there is one more domain called coping, which obtained an ? of 0.53, that was different to the other three domains that obtained an ? ? 0.70. The correlation between Health Quality of Life and Perception of Health Quality of life was statistically significant for both groups. The association between Health Quality of Life and health capability was only significant among children aged 12 to 16 years old (p<0.01). Conclusions: The   adapted ConQol questionnaire matched properly with the original one. The adapted questionnaire is valid and reliable to assess Health Quality of Life among Chilean children with congenital heart diseases.